What is it: Interstitial cystitis is a pelvic pain condition with an unknown etiology. Patients typically experience “an unpleasant sensation (pain, pressure, discomfort) perceived to be related to the urinary bladder” that lasts longer than six weeks in the absence of infection or other identifiable causes. Some patients have large, bleeding ulcers in their bladders, known as “Hunner’s Ulcers.” Others may have more modest bladder wall irritation and inflammation. Some have no bladder wall damage yet still have severe bladder symptoms. IC patients often struggle with coexisting medical conditions such as pelvic floor dysfunction, vulvodynia, prostatodynia, irritable bowel syndrome, anxiety disorder and others.
Just took it upon myself to leave many of the Facebook IC groups…until the drama can cease and people can learn to do a bit of research on their own condition I’m tapping out. The amount of stress the people in our community causes other chronic pain patients is horrendous. When I first got involved all those years ago it was never like this…every once in a while a few people would get a bit out of ha…
nd but where it’s at now is f’in horrid. I want no part. I still plan on blogging about important subject matters and expressing my opinions about where we’re at in the forward movement of understanding these conditions but I am no longer playing the “he said she said”…or “you said that you got better doing this game and I didn’t so you’re a liar” game. It’s old. I’m tired. It’s beyond ridiculous and unless people are willing to learn that these conditons affect everyone differently and someone else not having the same symptoms as you does not mean that they’re making it up, I’m out. Meh. There’s my morning rant. Tis all about that. I shall move on to the next momentarily.
“Love this line… Veterinarians know about ic but many urologists don’t. Taliban..your voice in the ic movement is fabulous. Thanks for making us think yet again.”