May 2013
1 post
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April 2013
2 posts
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March 2013
4 posts
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Be Your Own Advocate →
January 2013
3 posts
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December 2012
14 posts
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I'm out!
Just took it upon myself to leave many of the Facebook IC groups…until the drama can cease and people can learn to do a bit of research on their own condition I’m tapping out. The amount of stress the people in our community causes other chronic pain patients is horrendous. When I first got involved all those years ago it was never like this…every once in a while a few people...
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It's all about you kids... →
July 2012
13 posts
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“She seems so cool, so focused, so quiet, yet her eyes remain fixed upon the...”
– Neil Gaiman, Fragile Thing (via fluffynips)
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“Love this line… Veterinarians know about ic but many urologists...”
– Jill Osborne- president and founder of the IC-network
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Be loud…let your colors show.
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Go stalk me...dooooooooo ittttttttt
Follow me on twitter @talithaketeri
check out my IC blog at http://www.icramblings.com
like me on facebook or just like to hate me on facebook either way works for me
https://www.facebook.com/ICRamblings
Colors & Ribbons | IC Awareness →
Media Kit | IC Awareness →
What a proclamation looks like! | IC Awareness →
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IC awareness sheet →
IC Fact Sheet
July 10, 2012 by icnjill | 0 comments
What is it: Interstitial cystitis is a pelvic pain condition with an unknown etiology. Patients typically experience “an unpleasant sensation (pain, pressure, discomfort) perceived to be related to the urinary bladder” that lasts longer than six weeks in the absence of infection or other identifiable causes. Some patients have large, bleeding...
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R. I. P Work ethic →
I know I speak of no secret when I say that the health care system fails many patients looking to it for assistance on a daily basis. It can be as something as little as a busted lip, broken foot, or a terrible cough, or it can be something as serious as chest pains, chronic pain conditions, or cancer. I have found in my 20+ years of spending time in numerous health care venues that it typically...
IC Awareness | September is IC/BPS Awareness Month →
Gettin ready for it….I shall have projects up and running soon.
May 2012
3 posts
April 2012
38 posts
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A hiatus well deserved if I may say so myself…and... →
I have always been a pretty humble individual. Never one for rubbing shit in people’s faces or trapsing around flaunting shiny new things all over the town..mostly because I really don’t like to make people feel like shit but also because I never really had too much to rub in people’s faces in the first place. The way I always looked at it is that someone is always better at something that someone...
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Need any Interstitial Cystitis or Chronic Pelvic... →
The Interstitial Cystitis Network is a social advocacy company dedicated to IC, overactive bladder and other chronic pelvic pain conditions. In addition to our main educational website, located at:http://www.ic-network.com, we offer this mail order website to distribute a wide variety of books, products, low acid foods and resources that may be helpful. Your purchase and/or ICN subscription...
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The Incidence of Urological Symptoms in Ketamine... →
(05/11) Have you used, or are you using, ketamine?? Peeing blood? Can’t sleep through the night without running to the restroom? Ketamine has a powerful, damaging effect on the bladder and kidneys. The purpose of this survey is to gather some baseline data about ketamine use and the incidence and/or awareness of bladder symptoms that may develop with ketamine use. Please help us learn more...
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Ketamine Use and IC - Is there a connection? →
Ketamine is a recreational drug that is commonly used at parties and raves. Used throughout the world, recent research has demonstrated that ketamine can cause severe bladder ulceration that results in symptoms similar to IC. We’re interested in seeing just how many IC patients may have used ketamine in their past. No personal information will be collected in this survey, nor will an email...
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Medical Marijuana and IC →
Medical marijuana is a difficult, politically sensitive subject. While research studies have shown that medical marijuana can be effective in reducing neuropathic pain and/or muscle tension disorders, it is still illegal for use in many states. Our goal is to collect some data that can help determine if medical marijuana is helpful or hurtful in the management of pelvic pain and IC symptoms. Your...
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Weight Loss Programs and IC →
(Summer 2011) We’re curious! With so many prepackaged foods prepared for weight loss programs, is there a program (or programs) which are more bladder friendly than others? We’re asking for your personal experience with various national weight loss programs, including:
Atkins
Jenny Craig
Medi-Fast
Nutrisystem
SlimFast
South Beach
The Zone
Weight Watchers
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Interstitial Cystitis/Painful Bladder Syndrome and... →
Spring 2012) Researchers Stan Zaslau and Dale Riggs at West Virginia University are continuing their research into the impact of IC on relationships and sexual function.
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New IC Diet guidelines for 2012 →
How Do Foods Irritate The Bladder? It is not unusual for a healthy bladder to become irritated by urine, such as in patients going through chemotherapy or with patients abusing ketamine. But, when you have an injured or wounded bladder, urine can reach deeper into the bladder wall where it can directly stimulate nerves, stimulate mast cells to release histamine and create profound irritation.
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